Let's send Jay Dee to Legoland!

Join is for a fundraiser to send Jay Dee's family to Legoland! email me for more details. aeardley_3@hotmail.com

Hold On...

"If ever you are tempted to become discouraged or to lose faith, remember those faithful Saints who remained true in Kirtland. Hold on a little longer. You can do this! You are part of a special generation. You were prepared and preserved to live at this important time in the existence of our beautiful planet earth. You have a celestial pedigree and therefore have all the necessary talents to make your life an eternal success story."

--Dieter F. Uchtdorf, "Hold on a Little Longer", Ensign, Jan. 2010

"Motherhood is the one thing in all the world which most truly exemplifies the God-given virtues of creating and sacrificing. The mother who, in compliance with eternal law, brings into the world an immortal spirit occupies first rank in the realm of creation."

--David O Mckay, "Respect for Mothers and Their Divine Role", Gospel Ideals , Improvement Era, 1953], p. 456).Aaronic Priesthood Manual #1 (the lesson on Mothers)

Fast for JD

JD had a rough night with a high fever and his family is starting a fast for him. Please fast along with his family if you would like.

Change in plans...

JD is going to stay here at the pediatric unit until Saturday, then they will decide what to do from there.

April 4th, 2011

As much as the Cluff family prayed they would be over the sickness with JD, he has gotten meningitis again. DeAnna is driving him to Primary Children's today to be seen. They think there might be a problem with the shunt.

Please say a little extra prayer for JD today!

We love you Jay Dee!

April 7th

Feeling very happy and blessed today. JD is having fun playing XBox with Josh. He is even making his sound effects. (A very good sign!) :) I was expecting a rough day because it was a rough night. JD can not sleep at night. He is up every 30 min. I think tonight will be much better! :}

JD will leave the ICU soon.

JD is doing well this morning. He is in pain but recovering nicely. He will be able to leave the ICU soon.

Update on the surgery.

JD is finally in the OR. He was really scared, but so brave too. He had trick gum to give the docs and he tricked em all! It relieved some stress. About 5 hours of surgery.Docs didn't sound as optimistic as we had hoped. We just have a long road ahead of us. I hate the unknown. Thanks for the prayers from EVErYONE. They help a lot. We have such a great support system. We love you all.

We are so happy. JD is done! We are just waiting to see him now. The docs were very happy with the surgery. They were 2 hours faster than we expected. They didn't even have to remove his inner ear. They didn't have to extend the incision to remove a piece of his skull either. We are so relieved. Thanks for all the thoughts and prayers!

JD looks great. He just wanted a drink and didn't want to pee in the catheter. He is asleep and should be able to leave ICU tomorrow afternoon sometime. We are so greatful to Heavenly Father that he is doing so well and surgery was such a success. We surprised him with the new Lego Star Wars III game, he even cracked a smile! We LOVE YOU JD!

Words of encouragement for JD

Let's all take a minute and write some encouraging words for DeAnna to read to JD during his recovery.

The Power of Prayer

JD is feeling much better. Thank you everyone for your prayers. We are off to Salt Lake in the morning.

Prayers For Jay Dee

Jay Dee is in the hospital in St. George with spinal meningitis again. He is also having a severe stomach ache and headache. He is going to get an ultrasound on his tummy tonight. They are worried that he might have an infection from the appendix surgery. Please keep this tough little guy in your prayers.

Surgery is Rescheduled

Sorry it has been a while since the blog has been updated. Jay Dee's surgery has been rescheduled for April 1st, 2 weeks from today. Jay Dee is home now and doing great, he just has to stay healthy for the next two weeks! Please pray for Jay Dee's continued health! Thanks everyone!

News From DeAnna

We are being life flighted again to Primary. JD's tummy has hurt since 3 am and it is a problem, so we should get to primary's around 12:30. My poor lil boy has been in agony all day and he threw up twice. Hasn't eaten since dinner yesterday. And he has blood in his stool. I am speechless.

DeAnna text this to my cell phone tonight, and it breaks my heart to read it. Let's all remember JD and Deanna in our personal fasts this weekend. Feel free to leave a comment for DeAnna. Here is mine:

DeAnna,
You are struggling with a tremendous trial right now, I cannot even imagine what you are going through. I do know that you are one of the strongest, most capable people I have ever known and your family will get through this. Allow our Savior to carry you through this, and try to be comforted by the help and prayers of others. Love you guys!
Amanda

Surgery is still on the schedule for Friday

The doctors decided to go ahead with the surgery on Friday. The Cluffs will leave St. George Thursday to head for Primary Children's. Here is a post from DeAnna:

Surgery is still a go for now. We will check in at Primary on Thursday and go from there. Just praying no fevers so we can bring him home for a day or two before the drive up there. Thanks for the prayers and support. JD is such a fun boy. He makes me laugh when he is feeling good. It brings joy to my soul

JD has meningitis again.

JD's surgery will most likely postponed this Friday because he has meningitis again. For now they are leaving him in St. George at Dixie Regional Medical Center to treat it. JD is such a strong boy, and is doing OK dealing with it.

Please continue to pray for JD's fast recovery.

We love you JD!

Admitted to Hospital

Jay Dee was admitted to the pediatrics floor at Dixie Regional Medical Center for tonsillitis and a sinus infection. He will remain there through the weekend. He is doing OK today. He doesn't want to eat, but DeAnna is distracting him with wii games and sneaking bites in here and there. Please continue to keep JD in your prayers!

The surgery is still scheduled for March 4th as long as JD is healthy by then.

Surgery is scheduled.

JayDee is doing really well. He is back to normal on the Rocephin. He gets it in his picc line every day. His surgery is scheduled for March fourth, and he needs to be up there by the 3rd.

We are doing good and appreciate the thoughts and prayers from everyone.

DeAnna

Don't forget to join us this Monday for dinner at Red Robin. 5-8 Come have a fun family night with friends. 10% of purchases will be donated to the Cluff family.

Amanda

Yay!

JD was released from the hospital tonight. The Cluff family will be heading home to St. George tentatively on Friday. Hip Hip HOORAYYYY!!!

Roller Coaster

This experience definitely has been a roller coaster! JD has been on three antibiotics and the Doctors only want to send him home on one. They thought they had identified the bacteria causing the problem, but they aren't sure now. They want to grow one more culture to make sure what is causing the infection. Because of that JD probably won't be released today, but likely tomorrow. At that point we will take JD home and wait until he has been on the antibiotics for a total of three weeks and then come back for the surgery.

JD is doing great. We are so appreciative of all the support we are receiving. We are grateful for you prayers and concern.

Things can change in just one second. I was happy and now I am devastated. JD has to have brain surgery again in 2 weeks. AHHH I am gonna scream. Heaven help us!

JD is sooo happy to get out of here tomorrow. Me too :D

Poor kid doesn't know what is to come. I can't tell him or he will worry for 2 weeks.
Thanks for the strength and courage!

DeAnna

Continued from last post...

He was so calm that one nurse thought he was already sedated! He is doing so well. We are sooo proud of him. Our only concern is to find where and if there is a leak of spinal fluid and to take care of that. We feel some docs have been drag...ging their feet a little so it is frustrating. We want to make sure that this won't ever happen again. We will continue giving him antibiotics in his PICC line after we leave here. I think for another week? He is still on 3 heavy antibiotics and the docs are deciding right now which ONE will be the best for him to take.

JD is getting his PICC line right now. We might be able to get out tomorrow! It also depends on the ENT docs because we still don't know about the CSF. They will do something that puts... an isotope dye in his spinal fluid and then see if it comes out his nose. There are a couple of other things for them to try too.
Corbin, Melissa and Kynz Garn came to visit us last night. They did something to JD! He was soo hyper. It was fun to see him be so silly. He had to show off to his friends. They brought him a little hoop and basketball to play in his room and made us some yummy cookies. It was nice to see old friends.
The day before that, JD's cousins Amya and Daymian came to visit.
When his cousins came to visit, he was laughing and joking around again. Just being his normal self. It was really nice to see him that way. We got to make silly putty and we have been playing tic tac toe, Chutes and Ladders, CandyLand, reading books and even doing a little homework. He built ALL his Legos the first day he was here!

We want to thank EVERYONE for the thoughts and prayers and calls, texts and gifts. His buddy Camden gave him a cute stuffed lab puppy and balloon. He named him Chocolate. The Kimzey family gave him a really cute sock monkey. He named him Ap...ple. The nurses gave him a little Chameleon and his name is Rainbow. The Chipman's sent a card and money and our friends, the Fillmore's (Carson) sent him Looney Toones dvd's. This has kept him occupied and not as worried about things. In fact, he was watching it when the nurses came in to give him his PICC line.

DeAnna

Last night was good for JD, hard for me. His alarms were going off every 5 min. His Heart rate was too low. It was ok though. He slept through it! If his blood test from Sat is neg today, he will get his pic line today. ...That means no more poking or IV's! He was laughing and joking yesterday. It was so nice to see him like that. It brings us so much joy to see him out of some of his pain. We are still just waiting because there are still problems unknown how they will be fixed. Our spirits are high and we are doing good

Hello everyone! At the moment JD is doing good. Finally ate a lil bit. He hasn't eaten in 3 days. He is playing with Legos and watching Spiderman! He is so sick of the docs and worries everytime he sees one. Poor lil guy! We know the exact bacteria now and can work on killing that. The next step is to find if he has a csf leak and if he does, seal that off. His face is getting swollen so we are worried about that. First priority is to get him better. He probaly won't feel better for a couple days. We truly appreciate the thoughts and prayers. We are so blessed. There isn't anything we need. Our families are here and helping out. Josh is going back Tues for work and then will come back here Fri or Sat. If anybody wants to bring him a small dinner, I would appreciate it! He doesn't do well with feeding himself! He wouldn't want me to ask, but I know he will need it and so many are so willing to help! We have the best friends and ward members ever. Thanks again everyone for going above and beyond. We send our love back to each one of you! With love,

DeAnna

JD's progress

The doctors have identified the bacteria that is affecting JD, it is Strep Pneumonia. The bacteria is being killed successfully, and now they are trying to determine if there is a Cerebral Spinal Fluid leak. If there is a leak there is the possibility of surgery so please pray that there isn't.

January 20th, 2011

On January 20th, early in the morning JD Cluff was life flighted to Primary Childrens Hospital with Bacterial Meningitis. He is at Primary Childrens receiving antibiotics. DeAnna said that Jay Dee is very docile but responds well to medicine but only for a short time. At this time it is hard to tell. If everything goes well they will be back home in two weeks.

This blog will give updates on JD's condition, and information about how to help.

If you would like to send things (cards, etc...) the address is:

Primary Children's Medical Center

attn patient: Jay Dee Cluff

100 Mario Capecchi Dr.

SLC, UT 84113

The Cluff family is grateful for all the love, support and prayers.